Views of Parents of Children With Down Syndrome on Early Intervention Services in Turkey Problems, Expectations, and Suggestions

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dc.contributor.authorTomris, Gozde
dc.contributor.authorÇelik, Seçil
dc.contributor.authorDiken, İbrahim Halil
dc.contributor.authorAkemoğlu, Yusuf
dc.date.accessioned2023-07-26T11:54:07Z
dc.date.available2023-07-26T11:54:07Z
dc.date.issued2022
dc.departmentDÜ, Eğitim Fakültesi, Özel Eğitim Bölümüen_US
dc.description.abstractPerceptions of parents of young children receiving early intervention are important to understand. Parents have valuable opinions on the delivery of early interventions services and can provide critical feedback that can help professionals revise their existing early intervention delivery modalities. In the current study, we examined the perceptions of parents of young children with Down syndrome on early intervention services in Turkey. Specifically, we aimed to understand the parents' views on medical and educational evaluation and diagnosis processes. The study was conducted using a cross-sectional research design, which is one of the survey design methods. Data were collected from a total of 893 parents via an online survey. The results demonstrated that children with Down syndrome were diagnosed within an average of 2.3 months from birth, but the average age for starting education was 10.5 months. The majority of the parents evaluated the process until their children were diagnosed and accessed education services as a rather slow process that proceeded with their own means and efforts. Furthermore, the parents reported that during the diagnosis processes the type of materials, equipment, toys, and settings used were not relevant and time provided was insufficient. Moreover, the majority of the parents reported that the education services presented to them and their children were not sufficient and early intervention services were not provided within a system. As a result, although the legal regulations in Turkey are parallel to those in developed countries and studies in the field have been increasingly gaining momentum, issues such as the absence of an early intervention system model, insufficient cooperation between experts and institutions, and the shortage of expert staff in the field are still present and awaiting a solution.en_US
dc.identifier.doi10.1097/IYC.0000000000000212
dc.identifier.endpage132en_US
dc.identifier.issn0896-3746
dc.identifier.issn1550-5081
dc.identifier.issue2en_US
dc.identifier.scopus2-s2.0-85126063990en_US
dc.identifier.scopusqualityQ3en_US
dc.identifier.startpage120en_US
dc.identifier.urihttps://doi.org/10.1097/IYC.0000000000000212
dc.identifier.urihttps://hdl.handle.net/20.500.12684/12730
dc.identifier.volume35en_US
dc.identifier.wosWOS:000760944900003en_US
dc.identifier.wosqualityQ4en_US
dc.indekslendigikaynakWeb of Scienceen_US
dc.indekslendigikaynakScopusen_US
dc.institutionauthorAkemoğlu, Yusuf
dc.language.isoenen_US
dc.publisherLippincott Williams & Wilkinsen_US
dc.relation.ispartofInfants & Young Childrenen_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/openAccessen_US
dc.snmz$2023V1Guncelleme$en_US
dc.subjectDown Syndrome; Early Childhood Intervention; Early Intervention; Online Survey; Parentsen_US
dc.subjectEarly-Childhood Intervention; Special-Education; Satisfaction; Families; Disabilities; Perceptions; Involvement; Diagnosis; Outcomes; Mothersen_US
dc.titleViews of Parents of Children With Down Syndrome on Early Intervention Services in Turkey Problems, Expectations, and Suggestionsen_US
dc.typeArticleen_US

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